MARAC is aware of the announcement regarding the temporary suspension of bluebird bio clinical trials of LentiGlobin Gene Therapy for Sickle Cell Disease
Visit the Virtual Teaching Programme page on the ARISE website to discover more about the upcoming lectures and the registration procedure.
On 6-7 March 2021 the first online Royal College of Paediatrics and Child Health (RCPCH) International Conference will focus on the theme of ‘Learning together to improve child health’.
Sickle Cell Disease Association of America will hold its 48th Annual National Convention virtually from 13 October, through 17 October 2020.
The African Union Kwame Nkrumah Scientific Awards honours distinguished scientists in Africa! Deadline for nominations is 25 November 2020 at 5:00PM EAT.
The Houston Health Department is hosting a Sickle Cell Advocacy Summit on Thursday, October 8th at 3:00 PM CEST.
PRIME Education, a healthcare education and research company, presents Sickle Cell Disease: Taking Care of Your Health, a five-part video series that include useful resources for living healthy with Sickle Cell Disease.
Takeda organizes the 5th Rare Blood Day webinar on Thursday 24th September 2020, 16:00 – 18:30. It aims to provide with educational sessions for healthcare professionals working in Haematology
Professor Baba Inusa has the pleasure to invite you to the Annual Scientific Conference on Sickle Cell and Thalassaemia, 2020 to be held from 26th to 31st October. The theme is ‘Haemoglobinopathies: Emerging Challenges and Future Therapies’, that reflects the rapid progress in research for new drug therapies and curative therapies.
The webinar “Newborn Sickle Cell Disease Screening“ continues the Sickle Cell Disease webinar series, organised within the ARISE project. It will be held on Wednesday 22nd July, 2020 at 05:00 PM (BST).
Walk with the Stars is one of SCDAA’s largest events dedicated to finding better treatments and a cure for SCD. The funds raising from this initiative goes towards preventing the SCD complications through awareness, education, advocacy and research.
Save the date! Webinar “Addressing the Global Burden of Sickle Cell Disease During the COVID-19 Pandemic and Beyond”
The United States Department of Health and Human Services, in partnership with the American Society of Hematology and SickleinAfrica, and with the participation of the World Health Organization, invites you to join a webinar on strengthening SCD efforts during the COVID-19 pandemic and beyond, that is going to be held on June 29th 2020 at 9:00 AM EDT (1:00 PM GMT/4:00 PM EAT).
SAVE THE DATE! New webinar “Paediatric to adult transition care for patients with sickle cell disease”
We are pleased to invite you to join the webinar “Paediatric to adult transition care for patients with sickle cell disease”, organised within the ARISE project on Wednesday June 24th, 2020 at 03:30 PM (UK time).
We are pleased to invite you to join the webinar “Paediatric multisystem inflammatory syndrome temporally associated with COVID-19 and Sickle cell disease – what is the link?”, organised within the ARISE project in collaboration with the National Haemoglobinopathy Panel. It will be held on Monday June 15th, 2020 at 05:00 PM (UK time).
World Sickle Cell Day is a United Nation’s...
In response to the current pandemic, the ARISE team have highlighted the impact COVID-19 has on patients living with Sickle Cell.
ARISE presented its first webinar “COVID-19 and Sickle Cell Disease: the current scenario” that was held on the 19th May (Session 1) and the 28th May (Session 2). More than 100 registrations were reported and over 120 participants attended the webinar from different parts of the world also including people not involved in the ARISE project.
The second session of the webinar, to be held on Thursday 28th May, 2020 at 04:00 PM (UK time), will be the occasion to discuss with some relevant experts in the field who will provide their experience in order to understand the impact of COVID-19 on the SCD population, drawing conclusions from both the US and Lebanon. The emotional impact of the disease and the current response of the community in the US will be addressed as well.
We are pleased to invite you to join the webinar “COVID-19 and Sickle Cell Disease: the current scenario”, organised within the ARISE project. The first session of the webinar will be held on Tuesday 19th May, 2020 at 04:00 PM (UK time). Relevant experts in the field of the haemoglobinopathies will give their contribution to understand the impact of the COVID-19 on the Sickle Cell Disease population and to compare the current pandemic response from the UK, Italy and Ghana, outlining the lessons learnt.
Some useful suggestions were provided to help patients to prevent or to face complications such as the pulmonary ones.