Walk with the Stars is one of SCDAA’s largest events dedicated to finding better treatments and a cure for SCD. The funds raising from this initiative goes towards preventing the SCD complications through awareness, education, advocacy and research.
Save the date! Webinar “Addressing the Global Burden of Sickle Cell Disease During the COVID-19 Pandemic and Beyond”
The United States Department of Health and Human Services, in partnership with the American Society of Hematology and SickleinAfrica, and with the participation of the World Health Organization, invites you to join a webinar on strengthening SCD efforts during the COVID-19 pandemic and beyond, that is going to be held on June 29th 2020 at 9:00 AM EDT (1:00 PM GMT/4:00 PM EAT).
SAVE THE DATE! New webinar “Paediatric to adult transition care for patients with sickle cell disease”
We are pleased to invite you to join the webinar “Paediatric to adult transition care for patients with sickle cell disease”, organised within the ARISE project on Wednesday June 24th, 2020 at 03:30 PM (UK time).
We are pleased to invite you to join the webinar “Paediatric multisystem inflammatory syndrome temporally associated with COVID-19 and Sickle cell disease – what is the link?”, organised within the ARISE project in collaboration with the National Haemoglobinopathy Panel. It will be held on Monday June 15th, 2020 at 05:00 PM (UK time).
World Sickle Cell Day is a United Nation’s recognised day to raise awareness of sickle cell at a national and international level. On 22nd December 2008, the United Nations General Assembly adopted a resolution that recognises sickle cell disease as a public health...
In response to the current pandemic, the ARISE team have highlighted the impact COVID-19 has on patients living with Sickle Cell.
ARISE presented its first webinar “COVID-19 and Sickle Cell Disease: the current scenario” that was held on the 19th May (Session 1) and the 28th May (Session 2). More than 100 registrations were reported and over 120 participants attended the webinar from different parts of the world also including people not involved in the ARISE project.
The second session of the webinar, to be held on Thursday 28th May, 2020 at 04:00 PM (UK time), will be the occasion to discuss with some relevant experts in the field who will provide their experience in order to understand the impact of COVID-19 on the SCD population, drawing conclusions from both the US and Lebanon. The emotional impact of the disease and the current response of the community in the US will be addressed as well.
We are pleased to invite you to join the webinar “COVID-19 and Sickle Cell Disease: the current scenario”, organised within the ARISE project. The first session of the webinar will be held on Tuesday 19th May, 2020 at 04:00 PM (UK time). Relevant experts in the field of the haemoglobinopathies will give their contribution to understand the impact of the COVID-19 on the Sickle Cell Disease population and to compare the current pandemic response from the UK, Italy and Ghana, outlining the lessons learnt.
Some useful suggestions were provided to help patients to prevent or to face complications such as the pulmonary ones.
Bola and Stephanie along with Linda Yari participated in the Salama Radio 98.1FM interview in Kafanchan to talk about the ARISE project in order to increase the awareness on the Sickle Cell Disease at the community level.
The review “Paediatric to adult transition care for patients with sickle cell disease: a global perspective” aims to provide a global overview of the transition care practice and the baseline recommendations that can be adapted to local needs.
Updated guidelines have been published by the UK Public Health Agencies.
The ARISE team along with partner institutions organised the first train the trainer workshop in Abuja (Nigeria) in September 2019.
The Sickle Cell Society, the only national charity in the UK that supports and represents people affected by sickle cell disease, has recently published the 3rd edition of “Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care”.
The Centers for Disease Control and Prevention posted a new podcast, “Sickle Cell Disease: Give Blood, Save a Life”.
The American Society of Hematology (ASH) released new clinical practice guidelines on Sickle Cell Disease (SCD)-Related Transfusion Support, published in the Society’s peer-reviewed journal Blood Advances.
Due to the on-going concern about the outbreak of the Coronavirus (COVID-19), this event is postponed. The ARISE MTM will be an opportunity to engage in a fruitful and constructive dialogue between the ARISE consortium and the Research Executive Agency (REA), including also the seconded staff members.
Due to the on-going concern about the outbreak of the Coronavirus (COVID-19), this event is postponed. The Global Sickle Cell Disease Network (GSCDN), a community of SCD clinicians, scientists and researchers, organises in collaboration with the French SCD Community, represented by Jacque Elion, the 4th Global Congress on Sickle Cell Disease on April 7- 9, 2020 at the UNESCO Headquarters in Paris.
The 15th Annual Sickle Cell and Thalassaemia (ASCAT) meeting will be held from 29th to 31st October 2020 in London.