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Save the date – 7th Annual Walk with the Stars

Save the date – 7th Annual Walk with the Stars

Walk with the Stars is one of SCDAA’s largest events dedicated to finding better treatments and a cure for SCD. The funds raising from this initiative goes towards preventing the SCD complications through awareness, education, advocacy and research.

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Save the date! Webinar “Addressing the Global Burden of Sickle Cell Disease During the COVID-19 Pandemic and Beyond”

Save the date! Webinar “Addressing the Global Burden of Sickle Cell Disease During the COVID-19 Pandemic and Beyond”

The United States Department of Health and Human Services, in partnership with the American Society of Hematology and SickleinAfrica, and with the participation of the World Health Organization, invites you to join a webinar on strengthening SCD efforts during the COVID-19 pandemic and beyond, that is going to be held on June 29th 2020 at 9:00 AM EDT (1:00 PM GMT/4:00 PM EAT).

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Save the date! New webinar launched by ARISE

Save the date! New webinar launched by ARISE

We are pleased to invite you to join the webinar “Paediatric multisystem inflammatory syndrome temporally associated with COVID-19 and Sickle cell disease – what is the link?”, organised within the ARISE project in collaboration with the National Haemoglobinopathy Panel. It will be held on Monday June 15th, 2020 at 05:00 PM (UK time).

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COVID-19 and Sickle Cell Disease: the current scenario

COVID-19 and Sickle Cell Disease: the current scenario

ARISE presented its first webinar “COVID-19 and Sickle Cell Disease: the current scenario” that was held on the 19th May (Session 1) and the 28th May (Session 2). More than 100 registrations were reported and over 120 participants attended the webinar from different parts of the world also including people not involved in the ARISE project.

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Save the date: COVID-19 and Sickle Cell Disease: the current scenario – session 2

Save the date: COVID-19 and Sickle Cell Disease: the current scenario – session 2

The second session of the webinar, to be held on Thursday 28th May, 2020 at 04:00 PM (UK time), will be the occasion to discuss with some relevant experts in the field who will provide their experience in order to understand the impact of COVID-19 on the SCD population, drawing conclusions from both the US and Lebanon. The emotional impact of the disease and the current response of the community in the US will be addressed as well.

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Save the date: COVID-19 and Sickle Cell Disease: the current scenario – session 2

Save the date: COVID-19 and Sickle Cell Disease: the current scenario – session 1

We are pleased to invite you to join the webinar “COVID-19 and Sickle Cell Disease: the current scenario”, organised within the ARISE project.  The first session of the webinar will be held on Tuesday 19th May, 2020 at 04:00 PM (UK time).  Relevant experts in the field of the haemoglobinopathies will give their contribution to understand the impact of the COVID-19 on the Sickle Cell Disease population and to compare the current pandemic response from the UK, Italy and Ghana, outlining the lessons learnt. 

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ARISE project on air at Salama Radio 98.1FM!

ARISE project on air at Salama Radio 98.1FM!

Bola and Stephanie along with Linda Yari participated in the Salama Radio 98.1FM interview in Kafanchan to talk about the ARISE project in order to increase the awareness on the Sickle Cell Disease at the community level.  

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Paediatric to adult transition care for SCD patients

Paediatric to adult transition care for SCD patients

The review “Paediatric to adult transition care for patients with sickle cell disease: a global perspective” aims to provide a global overview of the transition care practice and the baseline recommendations that can be adapted to local needs.

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POSTPONED – Arise mid-term meeting

POSTPONED – Arise mid-term meeting

Due to the on-going concern about the outbreak of the Coronavirus (COVID-19), this event is postponed. The ARISE MTM will be an opportunity to engage in a fruitful and constructive dialogue between the ARISE consortium and the Research Executive Agency (REA), including also the seconded staff members.

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POSTPONED – 4th Global Congress on Sickle Cell Disease

POSTPONED – 4th Global Congress on Sickle Cell Disease

Due to the on-going concern about the outbreak of the Coronavirus (COVID-19), this event is postponed. The Global Sickle Cell Disease Network (GSCDN), a community of SCD clinicians, scientists and researchers, organises in collaboration with the French SCD Community, represented by Jacque Elion, the 4th Global Congress on Sickle Cell Disease on April 7- 9, 2020 at the UNESCO Headquarters in Paris.

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