ARISE consortium, as member of the International Hemologlobinopathy Research Network – INHERENT is excited to announce a paper recently published in the American Journal of Hematology.
The article “Newborn screening for sickle cell disease in Africa” has been published on the Lancet Haematology journal.It is focused on the newborn screening (NBS) for Sickle Cell Disease (SCD) just launched in Zambia.
The first two babies have been screened for Sickle Cell Disease at the Special Care Baby Unit of Ahmadu Bello University Teaching Hospital – ABUTH Main hospital, Shika in Nigeria.
We are glad to announce the launch of the Sickle Cell Disease (SCD) Newborn Screening (NBS) programme in Zambia that will be held on 21 April 2021 at 11:30 AM (South Africa time) at the Arthur Davison Children’ Hospital in Ndola.
MARAC is aware of the announcement regarding the temporary suspension of bluebird bio clinical trials of LentiGlobin Gene Therapy for Sickle Cell Disease
Visit the Virtual Teaching Programme page on the ARISE website to discover more about the upcoming lectures and the registration procedure.
PRIME Education, a healthcare education and research company, presents Sickle Cell Disease: Taking Care of Your Health, a five-part video series that include useful resources for living healthy with Sickle Cell Disease.
In response to the current pandemic, the ARISE team have highlighted the impact COVID-19 has on patients living with Sickle Cell.
Some useful suggestions were provided to help patients to prevent or to face complications such as the pulmonary ones.
Bola and Stephanie along with Linda Yari participated in the Salama Radio 98.1FM interview in Kafanchan to talk about the ARISE project in order to increase the awareness on the Sickle Cell Disease at the community level.
Updated guidelines have been published by the UK Public Health Agencies.
The ARISE team along with partner institutions organised the first train the trainer workshop in Abuja (Nigeria) in September 2019.
The Sickle Cell Society, the only national charity in the UK that supports and represents people affected by sickle cell disease, has recently published the 3rd edition of “Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care”.
The Centers for Disease Control and Prevention posted a new podcast, “Sickle Cell Disease: Give Blood, Save a Life”.
The American Society of Hematology (ASH) released new clinical practice guidelines on Sickle Cell Disease (SCD)-Related Transfusion Support, published in the Society’s peer-reviewed journal Blood Advances.
The PRECISE Network is a new and broadly-based group of research scientists and health advocates mainly based in the UK and Africa, but also including the World Health Organization.
Sickle cell disease (SCD) is among the world’s most common serious inherited diseases and that worsens over time. Treatments are available that can prevent complications and lengthen the lives of those suffering from this disorder.
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