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Save the date: COVID-19 and Sickle Cell Disease: the current scenario – session 1

Save the date: COVID-19 and Sickle Cell Disease: the current scenario – session 1

We are pleased to invite you to join the webinar “COVID-19 and Sickle Cell Disease: the current scenario”, organised within the ARISE project.  The first session of the webinar will be held on Tuesday 19th May, 2020 at 04:00 PM (UK time).  Relevant experts in the field of the haemoglobinopathies will give their contribution to understand the impact of the COVID-19 on the Sickle Cell Disease population and to compare the current pandemic response from the UK, Italy and Ghana, outlining the lessons learnt. 

ARISE project on air at Salama Radio 98.1FM!

ARISE project on air at Salama Radio 98.1FM!

Bola and Stephanie along with Linda Yari participated in the Salama Radio 98.1FM interview in Kafanchan to talk about the ARISE project in order to increase the awareness on the Sickle Cell Disease at the community level.  

Paediatric to adult transition care for SCD patients

Paediatric to adult transition care for SCD patients

The review “Paediatric to adult transition care for patients with sickle cell disease: a global perspective” aims to provide a global overview of the transition care practice and the baseline recommendations that can be adapted to local needs.

COVID-19 guidelines

COVID-19 guidelines

Updated guidelines have been published by the UK Public Health Agencies.

New Standards of Care for UK Children with Sickle Cell Disease

New Standards of Care for UK Children with Sickle Cell Disease

The Sickle Cell Society, the only national charity in the UK that supports and represents people affected by sickle cell disease, has recently published the 3rd edition of “Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care”.

POSTPONED – Arise mid-term meeting

POSTPONED – Arise mid-term meeting

Due to the on-going concern about the outbreak of the Coronavirus (COVID-19), this event is postponed. The ARISE MTM will be an opportunity to engage in a fruitful and constructive dialogue between the ARISE consortium and the Research Executive Agency (REA), including also the seconded staff members.

POSTPONED – 4th Global Congress on Sickle Cell Disease

POSTPONED – 4th Global Congress on Sickle Cell Disease

Due to the on-going concern about the outbreak of the Coronavirus (COVID-19), this event is postponed. The Global Sickle Cell Disease Network (GSCDN), a community of SCD clinicians, scientists and researchers, organises in collaboration with the French SCD Community, represented by Jacque Elion, the 4th Global Congress on Sickle Cell Disease on April 7- 9, 2020 at the UNESCO Headquarters in Paris.

International Pathology Day 2019

International Pathology Day 2019

The Royal College of Pathologist hosted again this year the International Pathology Day, on November 13th, 2019, with the participation of people all over the world.

FDA approves Voxelotor for Sickle Cell Disease

FDA approves Voxelotor for Sickle Cell Disease

Sickle cell disease (SCD) is among the world’s most common serious inherited diseases and that worsens over time. Treatments are available that can prevent complications and lengthen the lives of those suffering from this disorder.

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