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SAVE THE DATE: ITHANET virtual information day
The ITHANET virtual information day will be held virtually on September 29th 14:00 – 17:00 GMT+3.
Train-the-Trainer workshop 2022
An on-site training programme on Sickle Cell Disease newborn screening and laboratory themes is going to be held in Abuja from 2nd to 5th August.
In remembrance of Prof Kwaku Ohene-Frempong
Dear colleagues, friends, and the Sickle Cell Disease community, with profound sadness, we learned of the passing of Prof Kwaku Ohene-Frempong a giant in the Sickle Cell Disease field
ARISE at the Annual Scientific Conference on Sickle Cell and Thalassaemia 2022
The Annual Scientific Conference on Sickle Cell and Thalassemia (ASCAT) 2022 conference successfully completed a 3-day conference from 26th—28th January 2022.
Oxbryta received CHMP positive opinion for SCD
The Committee for Medicinal Products for Human Use at the EMA adopted a positive opinion recommending marketing authorization for Oxbryta® for the treatment of haemolytic anaemia due to sickle cell disease (SCD) in patients 12 years of age and older as monotherapy or in combination with hydroxycarbamide.
SAVE THE DATE – Annual Scientific Conference on Sickle Cell and Thalassaemia 2022
We are glad to invite you to the 17th Annual Scientific Conference on Sickle Cell and Thalassaemia – ASCAT that will be held online on 27 January 2022 – 28 January 2022.
The International Hemoglobinopathy Research Network: new article published
ARISE consortium, as member of the International Hemologlobinopathy Research Network – INHERENT is excited to announce a paper recently published in the American Journal of Hematology.
Newborn screening for SCD in Africa
The article “Newborn screening for sickle cell disease in Africa” has been published on the Lancet Haematology journal.It is focused on the newborn screening (NBS) for Sickle Cell Disease (SCD) just launched in Zambia.
First two babies screened for SCD in Kaduna State – Nigeria
The first two babies have been screened for Sickle Cell Disease at the Special Care Baby Unit of Ahmadu Bello University Teaching Hospital – ABUTH Main hospital, Shika in Nigeria.
SAVE THE DATE – Sickle Cell Disease Newborn Screening programme in Zambia
We are glad to announce the launch of the Sickle Cell Disease (SCD) Newborn Screening (NBS) programme in Zambia that will be held on 21 April 2021 at 11:30 AM (South Africa time) at the Arthur Davison Children’ Hospital in Ndola.
MARAC Statement: Temporary Suspension of Clinical Trials
MARAC is aware of the announcement regarding the temporary suspension of bluebird bio clinical trials of LentiGlobin Gene Therapy for Sickle Cell Disease
Virtual Teaching Programme 2021 now available
Visit the Virtual Teaching Programme page on the ARISE website to discover more about the upcoming lectures and the registration procedure.
SAVE THE DATE – RCPCH Conference, Singapore
On 6-7 March 2021 the first online Royal College of Paediatrics and Child Health (RCPCH) International Conference will focus on the theme of ‘Learning together to improve child health’.
48th Annual National Convention – Conference Alert
Sickle Cell Disease Association of America will hold its 48th Annual National Convention virtually from 13 October, through 17 October 2020.
African Union Kwame Nkrumah Awards for Scientific Excellence Awards 2020 Edition
The African Union Kwame Nkrumah Scientific Awards honours distinguished scientists in Africa! Deadline for nominations is 25 November 2020 at 5:00PM EAT.
Sickle Cell Advocacy Summit
The Houston Health Department is hosting a Sickle Cell Advocacy Summit on Thursday, October 8th at 3:00 PM CEST.
Sickle Cell Disease: Taking Care of Your Health
PRIME Education, a healthcare education and research company, presents Sickle Cell Disease: Taking Care of Your Health, a five-part video series that include useful resources for living healthy with Sickle Cell Disease.
5th Rare Blood Day
Takeda organizes the 5th Rare Blood Day webinar on Thursday 24th September 2020, 16:00 – 18:30. It aims to provide with educational sessions for healthcare professionals working in Haematology
Register now for the ASCAT Meeting 2020
Professor Baba Inusa has the pleasure to invite you to the Annual Scientific Conference on Sickle Cell and Thalassaemia, 2020 to be held from 26th to 31st October. The theme is ‘Haemoglobinopathies: Emerging Challenges and Future Therapies’, that reflects the rapid progress in research for new drug therapies and curative therapies.
SAVE THE DATE! ARISE webinar – Newborn Sickle Cell Disease Screening
The webinar “Newborn Sickle Cell Disease Screening“ continues the Sickle Cell Disease webinar series, organised within the ARISE project. It will be held on Wednesday 22nd July, 2020 at 05:00 PM (BST).

























