We are pleased to invite you to join the webinar “COVID-19 and Sickle Cell Disease: the current scenario”, organised within the ARISE project. The first session of the webinar will be held on Tuesday 19th May, 2020 at 04:00 PM (UK time). Relevant experts in the field of the haemoglobinopathies will give their contribution to understand the impact of the COVID-19 on the Sickle Cell Disease population and to compare the current pandemic response from the UK, Italy and Ghana, outlining the lessons learnt.
Some useful suggestions were provided to help patients to prevent or to face complications such as the pulmonary ones.
Bola and Stephanie along with Linda Yari participated in the Salama Radio 98.1FM interview in Kafanchan to talk about the ARISE project in order to increase the awareness on the Sickle Cell Disease at the community level.
The review “Paediatric to adult transition care for patients with sickle cell disease: a global perspective” aims to provide a global overview of the transition care practice and the baseline recommendations that can be adapted to local needs.
Updated guidelines have been published by the UK Public Health Agencies.
The ARISE team along with partner institutions organised the first train the trainer workshop in Abuja (Nigeria) in September 2019.
The Sickle Cell Society, the only national charity in the UK that supports and represents people affected by sickle cell disease, has recently published the 3rd edition of “Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care”.
The Centers for Disease Control and Prevention posted a new podcast, “Sickle Cell Disease: Give Blood, Save a Life”.
The American Society of Hematology (ASH) released new clinical practice guidelines on Sickle Cell Disease (SCD)-Related Transfusion Support, published in the Society’s peer-reviewed journal Blood Advances.
Due to the on-going concern about the outbreak of the Coronavirus (COVID-19), this event is postponed. The ARISE MTM will be an opportunity to engage in a fruitful and constructive dialogue between the ARISE consortium and the Research Executive Agency (REA), including also the seconded staff members.
Due to the on-going concern about the outbreak of the Coronavirus (COVID-19), this event is postponed. The Global Sickle Cell Disease Network (GSCDN), a community of SCD clinicians, scientists and researchers, organises in collaboration with the French SCD Community, represented by Jacque Elion, the 4th Global Congress on Sickle Cell Disease on April 7- 9, 2020 at the UNESCO Headquarters in Paris.
The PRECISE Network is a new and broadly-based group of research scientists and health advocates mainly based in the UK and Africa, but also including the World Health Organization.
The Royal College of Pathologist hosted again this year the International Pathology Day, on November 13th, 2019, with the participation of people all over the world.
The study day “Sickle Cell in Pregnancy and Childbirth” will be held on the 29th February 2020 at the St. Thomas’ Hospital in London.
Sickle cell disease (SCD) is among the world’s most common serious inherited diseases and that worsens over time. Treatments are available that can prevent complications and lengthen the lives of those suffering from this disorder.
The 2019-2020 Clinical Practice Guidelines on...
The official ARISE General Assembly has been...
13th annual SCD research and Educational symposium and 42nd National Sickle Cell Disease Scientific meeting
The ARISE team along with partner institutions...
The Annual Scientific Conference on Sickle Cell and Thalassaemia (ASCAT) will be held in London next 21-23 October 2019.