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Governance

The overall management with respect to all scientific, financial and legal aspects of the project will be the responsibility of the Project Coordinator. It will be supported by the General Assembly, the Steering Committee (SC) and assisted by a Project Management Team (PMT).
 


Project Management Team

The Project Management Team (PMT) oversees project activities and monitors compliance with the work plan, planned resources and time
schedule. Here below the PMT members:

Fedele (Duccio) Bonifazi

Fedele (Duccio) Bonifazi

Project Coordinator and PMT Member

Biomedical Engineer, Post-Graduate Master Degree in Health Technology Assessment and Management. Gianni Benzi Foundation President and Head of the IT & Research laboratory…

 

Baba Inusa

Baba Inusa

Project Scientific Coordinator and PMT Member

Dr Baba Inusa, MRCP, FRCPCH, DCP (Haem), FMCPaed, associate professor is the coordinator and paediatric lead with Dr Maria Pelidis (Paediatric Haematology) teaching and trainer for visitors…

Serena Ottomano

Serena Ottomano

Project Manager

Degree in Educational Sciences – Educator in intercultural and sociocultural processes. At the Administrative and Management Department of the Benzi Foundation she supports…

Raleen Fernandes

Raleen Fernandes

ARISE Scientific Programme Manager

Raleen has a degree in Life Sciences and a Masters in Medical Biotechnology. Having worked in the NHS (England) for over 8 years, Raleen brings to the ARISE team skills & experience in project management…

Stephanie Quirk Lauren

Stephanie Quirk Lauren

PMT Member

Stephanie Quirk, BA Hons Business Management. Steph has worked within the field of research as a data manager for the last year, supporting the delivery of clinical trials within Sickle Cell…

Steering Committee

The Steering Committee (SC) is responisble for operational management and approves all decisions with a projectwide impact. It is composed by the following members:

Fedele (Duccio) Bonifazi

Fedele (Duccio) Bonifazi

Project Coordinator

Biomedical Engineer, Post-Graduate Master Degree in Health Technology Assessment and Management. Gianni Benzi Foundation President and Head of the IT & Research laboratory…

 

Baba Inusa

Baba Inusa

Project Scientific Coordinator and WP4 Leader

Dr Baba Inusa, MRCP, FRCPCH, DCP (Haem), FMCPaed, associate professor is the coordinator and paediatric lead with Dr Maria Pelidis (Paediatric Haematology) teaching and trainer for visitors…

Serena Ottomano

Serena Ottomano

WP1 Leader

Degree in Educational Sciences – Educator in intercultural and sociocultural processes. At the Administrative and Management Department of the Benzi Foundation she supports…

Lucia Ruggieri

Lucia Ruggieri

WP2 Leader

Researcher at FGB. Master Degree in Medical Biotechnology, post-graduate Master of Science in Paediatric Medicines Development and Evaluation, internship at the European Medicines Agency…

Jacques Elion

Jacques Elion

WP3 Leader

Professor of Molecular Genetics at the Université de Paris and Visiting Professor at the Universidade de São Paulo (Brazil)…

Marina Kleanthous

Marina Kleanthous

WP5 Leader

Prof Marina Kleanthous (BSc, PhD) is the Head of the Molecular Genetics Thalassemia Department (MGTD) of the Cyprus Institute of Neurology and Genetics (CING)…

Paul Milligan

Paul Milligan

WP6 Leader

Paul Milligan is an epidemiologist and biostatistician. He is Professor of Epidemiology and Medical Statistics in the Faculty of Epidemiology and Population Health at the London School of Hygiene and Tropical Medicine…

Stephanie Quirk Lauren

Stephanie Quirk Lauren

WP7 Leader

Stephanie Quirk, BA Hons Business Management. Steph has worked within the field of research as a data manager for the last year, supporting the delivery of clinical trials within Sickle Cell…

Viviana Giannuzzi

Viviana Giannuzzi

WP8 Leader

PharmD, PhD in cellular biochemistry and pharmacology, post-graduate degree master in Clinical Research of Medicines. Her main areas of expertise are: ethics and regulatory, non-clinical and clinical research…

Lewis Hsu

Lewis Hsu

US representative

Lewis Hsu, MD, PhD, is director of pediatric sickle cell and professor at University of Illinois at Chicago. His research in sickle cell disease includes community health workers…

Bernhards Ogutu

Bernhards Ogutu

Kenya representative

Miguel Abboud

Miguel Abboud

Lebanon representative

Dr Miguel Abboud is Professor of Pediatrics, Hematology-oncology, Head of Sickle Cell Disease Program Chairman of the Department of Pediatrics and Adolescent Medicine, AUB…

Juliana Olu Funke Lawson

Juliana Olu Funke Lawson

Nigeria representative

Consultant Paediatrician/Vice Chairman of Zankli Medical Centre, Abuja, one of the ARISE Project consortium partners…

Susana Scott

Susana Scott

SC Member

Dr Susana Scott is an Epidemiologist at the London School of Hygiene and Tropical Medicine (LSHTM) with over 20 years of experience in maternal and infectious disease epidemiology in low income countries…

Ramsey Msheliza Yalma

Ramsey Msheliza Yalma

SC Member

Dr Ramsey Msheliza Yalma is a Senior lecturer and consultant public health physician at the Department of Community Medicine, College of Health Sciences, University of Abuja andTeaching Hospital, Nigeria…

Latest News & Events

Keep updated on all the initiatives and events of the ARISE project

Register now for the ASCAT Meeting 2020

Register now for the ASCAT Meeting 2020

Professor Baba Inusa has the pleasure to invite you to the Annual Scientific Conference on Sickle Cell and Thalassaemia, 2020 to be held from 26th to 31st October. The theme is ‘Haemoglobinopathies: Emerging Challenges and Future Therapies’, that reflects the rapid progress in research for new drug therapies and curative therapies.

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Save the date – 7th Annual Walk with the Stars

Save the date – 7th Annual Walk with the Stars

Walk with the Stars is one of SCDAA’s largest events dedicated to finding better treatments and a cure for SCD. The funds raising from this initiative goes towards preventing the SCD complications through awareness, education, advocacy and research.

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