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Governance
The overall management with respect to all scientific, financial and legal aspects of the project will be the responsibility of the Project Coordinator. It will be supported by the General Assembly, the Steering Committee (SC) and assisted by a Project Management Team (PMT).
Project Management Team
The Project Management Team (PMT) oversees project activities and monitors compliance with the work plan, planned resources and time
schedule. Here below the PMT members:
Fedele (Duccio) Bonifazi
Project Coordinator and PMT Member
Biomedical Engineer, Post-Graduate Master Degree in Health Technology Assessment and Management. Gianni Benzi Foundation President and Head of the IT & Research laboratory…
Baba Inusa
Project Scientific Coordinator and PMT Member
Dr Baba Inusa, MRCP, FRCPCH, DCP (Haem), FMCPaed, associate professor is the coordinator and paediatric lead with Dr Maria Pelidis (Paediatric Haematology) teaching and trainer for visitors…
Serena Ottomano
Project Manager
Degree in Educational Sciences – Educator in intercultural and sociocultural processes. At the Administrative and Management Department of the Benzi Foundation she supports…
Stephanie Quirk Lauren
PMT Member
Stephanie Quirk, BA Hons Business Management. Steph has worked within the field of research as a data manager for the last year, supporting the delivery of clinical trials within Sickle Cell…
Steering Committee
The Steering Committee (SC) is responisble for operational management and approves all decisions with a projectwide impact. It is composed by the following members:
Fedele (Duccio) Bonifazi
Project Coordinator
Biomedical Engineer, Post-Graduate Master Degree in Health Technology Assessment and Management. Gianni Benzi Foundation President and Head of the IT & Research laboratory…
Baba Inusa
Project Scientific Coordinator and WP4 Leader
Dr Baba Inusa, MRCP, FRCPCH, DCP (Haem), FMCPaed, associate professor is the coordinator and paediatric lead with Dr Maria Pelidis (Paediatric Haematology) teaching and trainer for visitors…
Serena Ottomano
WP1 Leader
Degree in Educational Sciences – Educator in intercultural and sociocultural processes. At the Administrative and Management Department of the Benzi Foundation she supports…
Lucia Ruggieri
WP2 Leader
Researcher at FGB. Master Degree in Medical Biotechnology, post-graduate Master of Science in Paediatric Medicines Development and Evaluation, internship at the European Medicines Agency…
Jacques Elion
WP3 Leader
Professor of Molecular Genetics at the Université de Paris and Visiting Professor at the Universidade de São Paulo (Brazil)…
Marina Kleanthous
WP5 Leader
Prof Marina Kleanthous (BSc, PhD) is the Head of the Molecular Genetics Thalassemia Department (MGTD) of the Cyprus Institute of Neurology and Genetics (CING)…
Paul Milligan
WP6 Leader
Paul Milligan is an epidemiologist and biostatistician. He is Professor of Epidemiology and Medical Statistics in the Faculty of Epidemiology and Population Health at the London School of Hygiene and Tropical Medicine…
Stephanie Quirk Lauren
WP7 Leader
Stephanie Quirk, BA Hons Business Management. Steph has worked within the field of research as a data manager for the last year, supporting the delivery of clinical trials within Sickle Cell…
Viviana Giannuzzi
WP8 Leader
PharmD, PhD in cellular biochemistry and pharmacology, post-graduate degree master in Clinical Research of Medicines. Her main areas of expertise are: ethics and regulatory, non-clinical and clinical research…
Lewis Hsu
US representative
Lewis Hsu, MD, PhD, is director of pediatric sickle cell and professor at University of Illinois at Chicago. His research in sickle cell disease includes community health workers…
Bernhards Ogutu
Kenya representative
Miguel Abboud
Lebanon representative
Dr Miguel Abboud is Professor of Pediatrics, Hematology-oncology, Head of Sickle Cell Disease Program Chairman of the Department of Pediatrics and Adolescent Medicine, AUB…
Juliana Olu Funke Lawson
Nigeria representative
Consultant Paediatrician/Vice Chairman of Zankli Medical Centre, Abuja, one of the ARISE Project consortium partners…
Susana Scott
SC Member
Dr Susana Scott is an Epidemiologist at the London School of Hygiene and Tropical Medicine (LSHTM) with over 20 years of experience in maternal and infectious disease epidemiology in low income countries…
Ramsey Msheliza Yalma
SC Member
Dr Ramsey Msheliza Yalma is a Senior lecturer and consultant public health physician at the Department of Community Medicine, College of Health Sciences, University of Abuja andTeaching Hospital, Nigeria…
Latest News & Events
Keep updated on all the initiatives and events of the ARISE project
First two babies screened for SCD in Kaduna State – Nigeria
The first two babies have been screened for Sickle Cell Disease at the Special Care Baby Unit of Ahmadu Bello University Teaching Hospital – ABUTH Main hospital, Shika in Nigeria.
SAVE THE DATE – Sickle Cell Disease Newborn Screening programme in Zambia
We are glad to announce the launch of the Sickle Cell Disease (SCD) Newborn Screening (NBS) programme in Zambia that will be held on 21 April 2021 at 11:30 AM (South Africa time) at the Arthur Davison Children’ Hospital in Ndola.
MARAC Statement: Temporary Suspension of Clinical Trials
MARAC is aware of the announcement regarding the temporary suspension of bluebird bio clinical trials of LentiGlobin Gene Therapy for Sickle Cell Disease