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Governance
The overall management with respect to all scientific, financial and legal aspects of the project will be the responsibility of the Project Coordinator. It will be supported by the General Assembly, the Steering Committee (SC) and assisted by a Project Management Team (PMT).
Project Management Team
The Project Management Team (PMT) oversees project activities and monitors compliance with the work plan, planned resources and time
schedule. Here below the PMT members:
Fedele (Duccio) Bonifazi
Project Coordinator and PMT Member
Biomedical Engineer, Post-Graduate Master Degree in Health Technology Assessment and Management. Gianni Benzi Foundation President and Head of the IT & Research laboratory…
Baba Inusa
Project Scientific Coordinator and PMT Member
Principal Investigator, African Research and Innovative Initiative for sickle cell education: improving research for service (ARISE) EU, Africa, Lebanon and UIC at Chicago…
Serena Ottomano
Project Manager
Degree in Educational Sciences – Educator in intercultural and sociocultural processes. At the Administrative and Management Department of the Benzi Foundation she supports…
Ioannis Mavridis
ARISE Programme Manager
Ioannis is a dedicated healthcare professional with a varied academic background in Political Science (Aristotle University of Thessaloniki), Political Communication (Cardiff University)…
Steering Committee
The Steering Committee (SC) is responisble for operational management and approves all decisions with a projectwide impact. It is composed by the following members:
Fedele (Duccio) Bonifazi
Project Coordinator
Biomedical Engineer, Post-Graduate Master Degree in Health Technology Assessment and Management. Gianni Benzi Foundation President and Head of the IT & Research laboratory…
Baba Inusa
Project Scientific Coordinator and WP4 Leader
Principal Investigator, African Research and Innovative Initiative for sickle cell education: improving research for service (ARISE) EU, Africa, Lebanon and UIC at Chicago…
Serena Ottomano
WP1 Leader
Degree in Educational Sciences – Educator in intercultural and sociocultural processes. At the Administrative and Management Department of the Benzi Foundation she supports…
Lucia Ruggieri
WP2 Leader
Researcher at FGB. Master Degree in Medical Biotechnology, post-graduate Master of Science in Paediatric Medicines Development and Evaluation, internship at the European Medicines Agency…
Wale Atoyebi
WP3 Leader
Marina Kleanthous
WP5 Leader
Prof Marina Kleanthous (BSc, PhD) is the Head of the Molecular Genetics Thalassemia Department (MGTD) of the Cyprus Institute of Neurology and Genetics (CING)…
Paul Milligan
WP6 Leader
Paul Milligan is an epidemiologist and biostatistician. He is Professor of Epidemiology and Medical Statistics in the Faculty of Epidemiology and Population Health at the London School of Hygiene and Tropical Medicine…
Bola Ojo
WP7 Leader
Director and co-founder- Sickle Cell Disease Cohort Research Foundation(SCORE). Involved in strategic planning, health policy, advocacy, patient empowerment, Implementation science research tools and community development programs…
Annalisa Landi
WP8 Leader
Researcher at Gianni Benzi Pharmacological Research Foundation (FGB) in Bari, Italy. PharmD, II level post-graduate Master in Regulatory Sciences “G.Benzi” at University of Pavia…
Lewis Hsu
US representative
Lewis Hsu, MD, PhD, is director of pediatric sickle cell and professor at University of Illinois at Chicago. His research in sickle cell disease includes community health workers…
Bernhards Ogutu
Kenya representative
Miguel Abboud
Lebanon representative
Dr Miguel Abboud is Professor of Pediatrics, Hematology-oncology, Head of Sickle Cell Disease Program Chairman of the Department of Pediatrics and Adolescent Medicine, AUB…
Juliana Olu Funke Lawson
Nigeria representative
Consultant Paediatrician/Vice Chairman of Zankli Medical Centre, Abuja, one of the ARISE Project consortium partners…
Susana Scott
SC Member
Dr Susana Scott is an Epidemiologist at the London School of Hygiene and Tropical Medicine (LSHTM) with over 20 years of experience in maternal and infectious disease epidemiology in low income countries…
Ramsey Msheliza Yalma
SC Member
Dr Ramsey Msheliza Yalma is a Senior lecturer and consultant public health physician at the Department of Community Medicine, College of Health Sciences, University of Abuja andTeaching Hospital, Nigeria…
Miguel Brito
SC Member
Professor of Human Genetics and Research Coordinator of Health and Technology Research Center (H&TRC) and Instituto Politecnico de Lisboa (Portugal) and Principal Researcher rand Angola Health Research Centre…
Latest News & Events
Keep updated on all the initiatives and events of the ARISE project
SAVE THE DATE – ARISE webinar on gene-therapy in Sickle Cell Disease and Transfusion-Dependent Thalassaemia
ARISE is organizing a webinar on gene-therapy (Exa-cel) in Sickle Cell Disease and Transfusion-Dependent Thalassaemia, that will be held online on Friday April 12th at 11 am UK time. The webinar will be hosted by Thomas Blair, Senior Medical Science Liaison for Vertex...
ARISE newsletter: February 2024
Read the ARISE newsletter: February 2024
Gene Therapy for Sickle Cell Disease
Gene Therapies for Sickle Cell Disease available