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Fedele (Duccio) Bonifazi
Project Coordinator and PMT Member
Biomedical Engineer, Post-Graduate Master Degree in Health Technology Assessment and Management. Gianni Benzi Foundation Vice-president and Head of the IT & Research laboratory, designing patient registries, platforms, databases and other tools to support research activities implementing innovation.
Person in charge for HTA-Thal, the Italian multiregional Thalassemia registry, collecting and storing clinical, economic and epidemiological data from ~ 2,000 Haemoglobinopathies patients in Italy.
Member of the HTA Working Group in the Regional Agency for Health and Social Care of Puglia (Italy).
Project manager in EU and national research projects (including the EU Networks of Excellence FP6 TEDDY and FP7 GRiP).
Latest News & Events
Keep updated on all the initiatives and events of the ARISE project
SAVE THE DATE – ASCAT Conference 2023
The ASCAT conference “Therapeutic Strategies For Sickle Cell Disease & Thalassaemia: Time to Consider A Multi-Modal & Personalised Approach” will be held on 25-28 October in London.
Third International Summit on Human Genome Editing (6-8 March 2023)
The Third International Summit on Human Genome Editing took place in London, UK on March 6-8, 2023.
SAVE THE DATE: Sickle Cell & Thalassaemia course
A two-day training course on Sickle Cell Disease and Thalassaemia will run virtually on 17th-18th October 2022. The course is organised by South Thames Sickle Cell & Thalassemia Network.