Within the ARISE project the review “Paediatric to adult transition care for patients with sickle cell disease: a global perspective” was published on the Lancet Haematology journal.
It was written by a task force of experts on transition in sickle cell disease from a multi-country (the USA, Europe, Middle East, and Africa) consortium, including some of the ARISE members, such as Baba Inusa, Wale Atoyebi, Lewis Hsu, Ijeoma Diaku-Akinwumi and Miguel Abboud.
The review aims to provide a global overview of the transition care practice and the baseline recommendations that can be adapted to local needs. As a matter of fact, the transition from paediatric to adult health services poses important challenges and is widely acknowledged as a period of high risk.
Moreover, the review highlights the priorities to be considered for any young person with Sickle Cell Disease transitioning from paediatric to adult health care: skills transfer, increasing self-efficacy, coordination, knowledge transfer, linking to adult services, and evaluating readiness (the SICKLE recommendations).
ARISE activities have the potential to become a template for future international collaboration to enhance health services and research in Africa, including the development of best practice in transition from paediatric to adult care.
You can read the review here and ask for any clarifications that might you need to the corresponding author: Prof Baba Inusa, Department of Paediatric Haematology, Evelina London Children’s Hospital, Guy’s and St Thomas NHS Foundation Trust.