We would like to inform you about two interesting events on Sickle Cell Disease that will be held on Thursday, October 8th, 2020.
The Houston Health Department is hosting a Sickle Cell Advocacy Summit on Thursday, October 8th at 3:00 PM CEST.
The summit aims to increase awareness of sickle cell by understanding the challenges faced by affected individuals including the impact of the COVID-19 pandemic and to celebrate the winds of change from legislative successes and discuss call-to-action policy goals to keep the momentum going.
The program will feature a distinguished group of speakers, including national thought-leaders, renowned sickle cell advocates, congressional champions, physicians specializing in sickle cell disease and policy advisors.
Registration is free! More detailed information about the event and registration procedure here.
ASH and Sickle Cell Disease Association of America (SCDAA) are hosting a virtual briefing on October 8, 2:00-3:00 pm (Eastern).
The briefing will highlight the report recently released by the National Academies of Sciences, Engineering, and Medicine (NASEM) entitled Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action, which provides recommendations for improving health care for the approximately 100,000 people in the U.S. with Sickle Cell Disease.
The event will also present an overview about the current state of Sickle Cell Disease during the pandemic; a personal story of a young adult’s journey with the disease; key findings and recommendations from the NASEM report on SCD; and a presentation of proposed policy strategies.
You can register for the briefing here.