EDUCATION & TRAINING
ARISE Virtual Teaching Programme
Due to the global COVID-19 pandemic, all our planned staff exchanges have been put on hold. As a project we have put in place a CPD accredited ARISE Virtual Teaching Programme (VTP) in order to continue face to face teaching. The programme comprises of 8 themes, each of which have lectures designed to relate to the programme work packages. For each lecture CPD points are awarded.
Throughout this pandemic we are still working towards enhancing the skills of all researchers involved in the project, as we continue to share our own learning achievements, educational resources and provide online courses.
We have been privileged to have a range of speakers from across the globe deliver a variety of topics to our exchange researchers who have joined from Kenya, Nigeria, Lebanon as well as the EU, USA & Tanzania. Our virtual teaching programme will continue to act as an interim measure to support our objectives and enhance learning outcomes.
The full VTP held in 2020 is available here.
The Agenda of the VTP 2021 is now available.
Here following you can find the forthcoming lectures and the links to the registration form.
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- Drug therapies in Sickle Cell Disease by B. Inusa – Lecture postponed, date to be confirmed. More details available soon
- February 10, 2021 (13:00 – 15:00 UK time) – Recent Diagnostic Advances in Newborn Screening by W. Atoyebi, J. Elion and N. Anyanwu – Lecture outline
- February 24, 2021 (13:00 – 15:00 UK time) – Project Management by F. Bonifazi – Lecture postponed, date to be confirmed. More details available soon
- March 17, 2021 (13:00 – 15:00 UK time) – Designing a research study by S. Scott
- March 24, 2021 (13:00 – 15:00 UK time) – Stroke screening and Transcranial Doppler (TSD) in SCD by F. Kirkham
- April 21, 2021 (13:00 – 15:00 UK time) – Designinig a population screening project by F. Piel
- Spleen rate indications for Malaria and SCD: role of HbF in SC presentation by A. Adekile – Lecture postponed, date to be confirmed. More details available soon
- May 19, 2021 (16:00 – 18:00 UK time) – Comprehensive management of SCD in children by M. De Montalembert
Please consider that only attendees who join the lecture in full will be awarded with the full foreseen CPD points
VTP lectures teaching material
Treatment of Sickle Cell Disease
2020 lectures:
- B. Inusa – Introduction to haemoglobinopathies: part 1, part 2 (lecture recording)
- R. Colombatti – Paediatric problems in Sickle Cell Disease (lecture recording)
- A. Campbell – Global pain burden (lecture recording)
- K. Anie – Management of SCD (lecture recording)
- F. French – Sickle Cell management in A&E (lecture recording)
- B. Inusa – Antibiotic prophilaxys in Sickle Cell Disease (lecture recording)
- A. Adekile – The Spleen in Sickle Cell Disease: Influence of Malaria (lecture recording)
- R. Kesse-Adu – Chronic Complications in sickle cell and their management in adult patients (lecture recording)
- C. Lederer – Introduction to Gene & Cell Therapy for Haemoglobinopathies (lecture recording)
2021 lectures:
- F. Kirkham – Stroke screening and Transcranial Doppler (TSD) in SCD (lecture recording)
- M. De Montalembert – Comprehensive management of SCD in children (lecture recording)
Neuropsychological Issues
Laboratory diagnosis
2020 lectures:
- W. Atoyebi – SCD and pathology (lecture recording part 1, part 2)
- J. Elion – SCD and pathology: genetics of haemoglobinopathies (lecture recording)
- A. Kwabena-Asubonteng – Demonstration of the Ghana newborn screening application (lecture recording)
- A. Adam – Demonstration of Hb-Electrophoresis by Isoelectric focusing (IEF) method (IEF video demonstration)
- J. Elion – IEF vs HPLC (lecture recording)
- Case Studies: Haemoglobinopathies Including Newborn Screening – The Challenges and Discrepancies – session 1 slides, session 2 slides (Session 1 Agenda – Session 2 Agenda)
2021 lectures:
- W. Atoyebi, J. Elion and N. Anyanwu – Recent Diagnostic Advances in Newborn Screening (lecture recording)
- ‘A review of current approaches across continents’ UK Laboratory Screening (W. Atoyebi)
- Newborn Screening Point Of Care Testing (W. Atoyebi)
- Recent diagnostic advances in Newborn screening of sickle cell disease (J. Elion)
- Newborn screening in SCD: a review of current approaches across continents (J. Elion)
- Newborn Screening Pathway (N. Anyanwu)
Counselling in Sickle Cell Disease
Epidemiology of Sickle Cell Disease
Implementation science for implementation of New Born Screening
- L. Hsu – How can implementation science frameworks help newborn screening in african settings (lectures part 1, part 2, part 3 – lectures recordings part 1, part 2, part 3)
- B. Ojo – Community stakeholder engagement (lecture recording)
- L. Gwani – Policy maker engagement (Nigeria) – (lecture recording)
- S. Quirk – Stakeholder engagement (lecture recording)
Research Training in SCD
2020 lectures:
- D. Darbari – How to write a research paper? (lecture recording)
- K. Anie – Psychological Research Themes in Sickle Cell Disease (lecture recording)
2021 lectures:
- S. Scott – Designing a research study (For all the ARISE members, for additional information about the lecture and the link at the recording please contact us at: arise@benzifoundation.org)
Research ethics
- A. Landi – Informed Consent form
- A. Didio – Assent form and informative material for minors
- L. Ruggieri – Clinical studies registries
Lectures recording available here.
Approximate model for online resource library for ARISE could be a hybrid of the CDC.gov webpages for sickle cell https://www.cdc.gov/ncbddd/sicklecell/index.html and the website for HRSA HIV/AIDS Bureau https://hab.hrsa.gov/publications . This might serve as a Library or Toolkit for the education/training activities in Work Packages 2, 4, 5, 7 because some material is core information that is good for educating families, counseling, training CHEW, and even training clinicians.
- Content stored online, has keywords or clustered in webpages to allow search for topics and for audiences
- PDF text https://www.cdc.gov/ncbddd/sicklecell/materials/factsheets.html https://www.cdc.gov/ncbddd/sicklecell/healthyliving.html https://www.cdc.gov/ncbddd/sicklecell/traits.html
- Pictures and infographics
- Videos? Podcasts?
- PowerPoint presentations
- https://targethiv.org/
- https://hab.hrsa.gov/about-ryan-white-hivaids-program/part-f-aids-education-and-training-centers-aetc-program
- https://sickleemergency.duke.edu/educational-resources/short-presentations-online-learning
- http://www.bioethicsinstitute.org/research/projects-2/hope/sickle-cell-disease-facilitators-guide
- Clinical guidelines and Model programs for specific clinical scenarios – these can be presented in different ways but I really like the HIV/AIDS Bureau examples.
- https://hab.hrsa.gov/clinical-quality-management/clinical-care-guidelines-and-resources
- https://hab.hrsa.gov/about-ryan-white-hivaids-program/spns-workforce-building
- https://hab.hrsa.gov/about-ryan-white-hivaids-program/special-projects-national-significance-spns-program-initiative-products
- https://hab.hrsa.gov/sites/default/files/hab/Publications/careactionnewsletter/june2011.pdf
- https://hab.hrsa.gov/publications/library/2013-hiv-continuum-care-tennessee
- Clinician training video https://sickleemergency.duke.edu/educational-resources/videos
- Download modules of materials