EDUCATION & TRAINING
Workshop – Train the trainer 2019
Programme and report
Session 1 - Welcome
- Gajere Gyawiya Jonathan – Structure of healthcare in Nigeria and new born screening
- Kolade Ernest – Recent studies in Africa – REACH & NoHARM
Session 2 - International collaboration
Session 3 - Counselling, sample collection and transportation
- Logistics including forms, sampling, demographics, transportation & storage – G. Bahago and G. Olanipekun
- N. Anyanwu – Confidentiality, breaking bad news and counselling
- W. Atoyebi- The UK National Haemoglobinopathy Registry and Dashboard
Session 4 - Information and Data Management
- A. Asubonteng – Management of Newborn Screening Data in Ghana
- R. O’Loughlin – Information governance and data collection to support screening
Session 5 - Comprehnsive care and follow-up care clinics
- E. David – Sickle Cell Disease: Routine Screening of Children including TCD
- Management protocols – F. Lawson and H. Ahmad
- O. Oniyangi – Primary Health Care – Initial assessment and counselling for Sickle Cell Disease
- S. Obaro – The Long Road to “ARISE” from Nigeria
- U. Nnebe-Agumadu – Recruiting Sickle Cell Patients….Pediatric sickle cell unit UATH
- B. Inusa – ARISE project
Session 6 - Essential skills
- A. Mande – Communication and dissemination plan for implementation of ARISE project in Nigeria 2019 – 2022
- N.D. Ifere – Sickle Cell Disease, the society and education
- R. Yalma – Retention Strategies For Life Course Studies of Sickle Cell Disease in Nigeria
- A. Hassan – Role and Responsibilities In Achieving Effective Team Work in the Laboratory
Session 7 - Laboratory staff
- O. Fakolujo – Principles of IEF for newborn screening /protocols
