EDUCATION & TRAINING

Other Educational Resources

LSHTM short courses

Short courses provide opportunities to study specialised topics in a broad range of health and global health fields. LSHTM, one of the ARISE consortium partners, provides with useful and interesting short courses. More detailed information on the topics addressed by each course and the registration procedure here.

Vision of Hope: Integration of Palliative Care in Chronic Pediatric Disease

A training curriculum developed by the Johns Hopkins Berman Institute of Bioethics aimed to integrate the principles of paediatric palliative care into the care of individuals living with Sickle Cell Disease (discover more here).

Sickle Cell Disease - Duke University

Some videos on key aspects of Sickle Cell Disease management developed by Duke University (watch them here).

American Society of Hematology (ASH) – Sickle Cell Disease Course

The Sickle Cell Disease Course developed within the ASH Benign Hematology Curriculum (BHC) is a series of free, web-based videos designed to supplement education in Sickle Cell Disease for fellows (learn more here).

Rethink Sickle Cell Disease

Rethink Sickle Cell Disease publishes educational contents on Sickle Cell Disease Pathophysiology, vaso-occlusive crises in Sickle Cell Disease and their clinical and societal impact

South Thames Sickle Cell & Thalassaemia Network (STSTN)

STSTN is a haemoglobinopathy collaboration led by healthcare professionals, including consultants, nurses, psychologists and others, across different members in UK. It includes relevant information for Sickle Cell Disease patients

2019-2020 ASH Clinical Practice Guidelines on SCD

The American Society of Hematology (ASH) initiated an effort to develop clinical practice guidelines on Sickle Cell Disease (SCD) to identify best practices for the management of acute and chronic complications of SCD and ways to improve the quality of care for patients.

It is essential to provide updated treatment guidelines that reflect the newest evidence about the disease, ensuring the medical community can better treat SCD and people with SCD can make the best decisions for their care.

Here following the available guidelines:

You can discover more in the following infographics:

 

Approximate model for online resource library for ARISE could be a hybrid of the CDC.gov webpages for sickle cell https://www.cdc.gov/ncbddd/sicklecell/index.html   and the website for HRSA HIV/AIDS Bureau https://hab.hrsa.gov/publications . This might serve as a Library or Toolkit for the education/training activities in Work Packages 2, 4, 5, 7 because some material is core information that is good for educating families, counseling, training CHEW, and even training clinicians.

  1. Content stored online, has keywords or clustered in webpages to allow search for topics and for audiences
    1. PDF text https://www.cdc.gov/ncbddd/sicklecell/materials/factsheets.html    https://www.cdc.gov/ncbddd/sicklecell/healthyliving.html   https://www.cdc.gov/ncbddd/sicklecell/traits.html
    2. Pictures and infographics
      1. https://www.cdc.gov/ncbddd/sicklecell/images/infographic-5-facts-1185px.jpg
      2. https://www.cdc.gov/ncbddd/sicklecell/documents/tipsheets_guide.pdf
    3. Videos? Podcasts?
      1.  https://hab.hrsa.gov/livinghistory/
      2. https://www.cdc.gov/ncbddd/sicklecell/materials/video.html
      3. https://www.cdc.gov/ncbddd/sicklecell/stories.html
    4. PowerPoint presentations
      1. https://targethiv.org/
      2. https://hab.hrsa.gov/about-ryan-white-hivaids-program/part-f-aids-education-and-training-centers-aetc-program
      3. https://sickleemergency.duke.edu/educational-resources/short-presentations-online-learning
      4. http://www.bioethicsinstitute.org/research/projects-2/hope/sickle-cell-disease-facilitators-guide
    5. Clinical guidelines and Model programs for specific clinical scenarios  – these can be presented in different ways but I really like the HIV/AIDS Bureau examples.
      1. https://hab.hrsa.gov/clinical-quality-management/clinical-care-guidelines-and-resources
      2. https://hab.hrsa.gov/about-ryan-white-hivaids-program/spns-workforce-building
      3. https://hab.hrsa.gov/about-ryan-white-hivaids-program/special-projects-national-significance-spns-program-initiative-products
      4. https://hab.hrsa.gov/sites/default/files/hab/Publications/careactionnewsletter/june2011.pdf
      5. https://hab.hrsa.gov/publications/library/2013-hiv-continuum-care-tennessee
      6. Clinician training video  https://sickleemergency.duke.edu/educational-resources/videos
  2. Download modules of materials