EDUCATION & TRAINING

Blood transfusions: what you need to know and do

Blood Transfusions: What You Need to Know and Do is a series of short, animated videos for individuals with Sickle Cell Disease (SCD) and their caregivers. It also could be informative for clinicians who are less familiar with the complications of concern for individuals with SCD who receive therapeutic blood transfusions.

The 6-part series explains in plain language topics like acute and chronic transfusion; antigens and antibodies; hemolytic transfusion reactions; cross-matching, iron overload, and why it’s important to diversify the blood supply.

A key take-away is a checklist of personal data that people with SCD who receive transfusions should track so they can work with their doctors to avoid complications.

The series reflects U.S. practice recommendations for transfusion in SCD as of November 2020. It was produced by the Georgia Health Policy Center and the Sickle Cell Community Consortium. You can freely watch the series here below.

Episodes

Episode #1: What are blood transfusions?

Episode #2: Understanding your blood

Episode #3: Transfusion reactions

Episode #4: Testing, Tracking and Knowing your normal

Episode #5: All about iron

Episode #6: Diversify the blood supply

Approximate model for online resource library for ARISE could be a hybrid of the CDC.gov webpages for sickle cell https://www.cdc.gov/ncbddd/sicklecell/index.html   and the website for HRSA HIV/AIDS Bureau https://hab.hrsa.gov/publications . This might serve as a Library or Toolkit for the education/training activities in Work Packages 2, 4, 5, 7 because some material is core information that is good for educating families, counseling, training CHEW, and even training clinicians.

  1. Content stored online, has keywords or clustered in webpages to allow search for topics and for audiences
    1. PDF text https://www.cdc.gov/ncbddd/sicklecell/materials/factsheets.html    https://www.cdc.gov/ncbddd/sicklecell/healthyliving.html   https://www.cdc.gov/ncbddd/sicklecell/traits.html
    2. Pictures and infographics
      1. https://www.cdc.gov/ncbddd/sicklecell/images/infographic-5-facts-1185px.jpg
      2. https://www.cdc.gov/ncbddd/sicklecell/documents/tipsheets_guide.pdf
    3. Videos? Podcasts?
      1.  https://hab.hrsa.gov/livinghistory/
      2. https://www.cdc.gov/ncbddd/sicklecell/materials/video.html
      3. https://www.cdc.gov/ncbddd/sicklecell/stories.html
    4. PowerPoint presentations
      1. https://targethiv.org/
      2. https://hab.hrsa.gov/about-ryan-white-hivaids-program/part-f-aids-education-and-training-centers-aetc-program
      3. https://sickleemergency.duke.edu/educational-resources/short-presentations-online-learning
      4. http://www.bioethicsinstitute.org/research/projects-2/hope/sickle-cell-disease-facilitators-guide
    5. Clinical guidelines and Model programs for specific clinical scenarios  – these can be presented in different ways but I really like the HIV/AIDS Bureau examples.
      1. https://hab.hrsa.gov/clinical-quality-management/clinical-care-guidelines-and-resources
      2. https://hab.hrsa.gov/about-ryan-white-hivaids-program/spns-workforce-building
      3. https://hab.hrsa.gov/about-ryan-white-hivaids-program/special-projects-national-significance-spns-program-initiative-products
      4. https://hab.hrsa.gov/sites/default/files/hab/Publications/careactionnewsletter/june2011.pdf
      5. https://hab.hrsa.gov/publications/library/2013-hiv-continuum-care-tennessee
      6. Clinician training video  https://sickleemergency.duke.edu/educational-resources/videos
  2. Download modules of materials