EDUCATION & TRAINING

 

ARISE webinars on iron overload and MRI in SCD

ARISE presents a new series of webinars on iron overload and the use of the Magnetic Resonance Imaging (MRI) in Sickle Cell Disease (SCD).

  • Iron overload: an elusive complication in sickle cell disease and thalassaemia” on 13th September 2023 at 3:00pm Nigerian time – GMT+1. It is focused on the physiology of iron overload, how it is linked to blood transfusions, complications that can occur if left untreated and the importance of reliable measurements of iron overload to guide therapy.
  • “MRI diagnostics of iron overload using the affordable, AI-trained method FerriSmart” on 28th September 2023 at 3:00pm Nigerian time – GMT +1. It presents the use of AI-technology to make MRI evaluations of iron overload affordable whilst still reliable. You will learn about the novel AI-trained method FerriSmart, how MRI diagnostics of iron overload work and how the new fully automated image analysis tool compares to the gold standard FerriScan.

    Both sessions will be held by Professor Tim St Pierre, a biomedical physicist who has a strong research interest in the form and properties of iron in the human body and has helped develop diagnostic tools for the non-invasive measurement of iron levels in human tissues.  He is a Senior Honorary Research Fellow at The University of Western Australia and has a part time position as Chief Research Scientist at Resonance Health Analysis Services Pty Ltd.

    Webinar 1 - Iron overload: an elusive complication in sickle cell disease and thalassaemia
    Webinar 2 - MRI diagnostics of iron overload using the affordable, AI-trained method FerriSmart

    To be held on 28th September 2023 at 3:00pm Nigerian time – GMT +1

    Approximate model for online resource library for ARISE could be a hybrid of the CDC.gov webpages for sickle cell https://www.cdc.gov/ncbddd/sicklecell/index.html   and the website for HRSA HIV/AIDS Bureau https://hab.hrsa.gov/publications . This might serve as a Library or Toolkit for the education/training activities in Work Packages 2, 4, 5, 7 because some material is core information that is good for educating families, counseling, training CHEW, and even training clinicians.

    1. Content stored online, has keywords or clustered in webpages to allow search for topics and for audiences
      1. PDF text https://www.cdc.gov/ncbddd/sicklecell/materials/factsheets.html    https://www.cdc.gov/ncbddd/sicklecell/healthyliving.html   https://www.cdc.gov/ncbddd/sicklecell/traits.html
      2. Pictures and infographics
        1. https://www.cdc.gov/ncbddd/sicklecell/images/infographic-5-facts-1185px.jpg
        2. https://www.cdc.gov/ncbddd/sicklecell/documents/tipsheets_guide.pdf
      3. Videos? Podcasts?
        1.  https://hab.hrsa.gov/livinghistory/
        2. https://www.cdc.gov/ncbddd/sicklecell/materials/video.html
        3. https://www.cdc.gov/ncbddd/sicklecell/stories.html
      4. PowerPoint presentations
        1. https://targethiv.org/
        2. https://hab.hrsa.gov/about-ryan-white-hivaids-program/part-f-aids-education-and-training-centers-aetc-program
        3. https://sickleemergency.duke.edu/educational-resources/short-presentations-online-learning
        4. http://www.bioethicsinstitute.org/research/projects-2/hope/sickle-cell-disease-facilitators-guide
      5. Clinical guidelines and Model programs for specific clinical scenarios  – these can be presented in different ways but I really like the HIV/AIDS Bureau examples.
        1. https://hab.hrsa.gov/clinical-quality-management/clinical-care-guidelines-and-resources
        2. https://hab.hrsa.gov/about-ryan-white-hivaids-program/spns-workforce-building
        3. https://hab.hrsa.gov/about-ryan-white-hivaids-program/special-projects-national-significance-spns-program-initiative-products
        4. https://hab.hrsa.gov/sites/default/files/hab/Publications/careactionnewsletter/june2011.pdf
        5. https://hab.hrsa.gov/publications/library/2013-hiv-continuum-care-tennessee
        6. Clinician training video  https://sickleemergency.duke.edu/educational-resources/videos
    2. Download modules of materials