EDUCATION & TRAINING
Also this year ARISE supported The Annual Scientific Conference on Sickle Cell and Thalassaemia – ASCAT 2020, that was held from 26th to 31st October in close collaboration with the European Heamatology Association(EHA) and the British Society of Haematology (BSH). Due to the COVID-19 pandemic an online virtual programme of events was held with a face to face element in the final days.
This year’s conference may in time turn out to provide a new and improved forum to come together to share best practice and develop strategies for the future. The theme is ‘Haemoglobinopathies: Emerging Challenges and Future Therapies’, that reflects the rapid progress in research for new drug therapies and curative therapies. A number of FDA approvals and other national approval process are at different stages.
Considering that the majority of patients with Sickle Cell Disease and Thalassemia live in low resource settings, these new therapies may not be readily accessible or affordable. Therefore, our attention needs to be refocused to improve newborn screening and comprehensive care, hydroxyurea therapy, blood transfusion and effective iron chelation.
Discover more about the conference programme here below:
The summary of the proceedings is now available.
Here following the closing remarks from Professor Baba Inusa, founder of the ASCAT Conference.
- Content stored online, has keywords or clustered in webpages to allow search for topics and for audiences
- PDF text https://www.cdc.gov/ncbddd/sicklecell/materials/factsheets.html https://www.cdc.gov/ncbddd/sicklecell/healthyliving.html https://www.cdc.gov/ncbddd/sicklecell/traits.html
- Pictures and infographics
- Videos? Podcasts?
- PowerPoint presentations
- Clinical guidelines and Model programs for specific clinical scenarios – these can be presented in different ways but I really like the HIV/AIDS Bureau examples.
- Clinician training video https://sickleemergency.duke.edu/educational-resources/videos
- Download modules of materials